tag:blogger.com,1999:blog-7928838697845211945.post1015341574248797364..comments2021-06-12T09:25:16.191-05:00Comments on Girl, Interrupted by Polymyositis: October 26Unknownnoreply@blogger.comBlogger3125tag:blogger.com,1999:blog-7928838697845211945.post-34770914320035360622011-11-25T11:22:21.769-06:002011-11-25T11:22:21.769-06:00I can't believe you can run! You are so lucky!...I can't believe you can run! You are so lucky! I can barely walk more than 20 feet. I was diagnosed in Feb. 2011 and have been on varying doses of Prednisone 60 mg - 100 mg, but my CK level has yet to drop lower than 1000 and the pain just won't quit. I recently started on Imuran, but no relief yet. I'm glad to have found your blog and I look forward to envying your running :-)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7928838697845211945.post-51785507789017442011-11-16T20:38:57.501-06:002011-11-16T20:38:57.501-06:00lucky you, im still on prednisone... have to tried...lucky you, im still on prednisone... have to tried cellcept? im starting it tomorrow, and judging from other websites it stabilized CK levels, but the price is ridiculous...Sellonichttps://www.blogger.com/profile/10800653527667521029noreply@blogger.comtag:blogger.com,1999:blog-7928838697845211945.post-89749227235758048532011-11-01T15:57:32.950-05:002011-11-01T15:57:32.950-05:00HI my sister passed away Aug 15th this yr with thi...HI my sister passed away Aug 15th this yr with this disease. Prednisone was driving her crazy and so when she stopped that she deteriorated. I was in desperate search for a cure for her something and I found it only too late for her. please please look at my website there is HELP for you you don't have to suffer forever<br />www.lifevantage.com/shelleygibson I pray you try this and get back your life. I know a woman who suffered with fibromyalgia for 8 yrs in pain and 2 weeks on Protandim her pain was gone now she too is selling it....or email me at shelleyrenaygibson@hotmail.com and I will share more of my sisters story.Anonymousnoreply@blogger.com