Tuesday, August 2, 2011


CPK still climbing on 10 mgs of Prednisone. I was shocked that my last round of bloodwork showed increased inflammation even after a few weeks of steriods. I have been trying 20 for a week now, and I still feel like the inflammation is ramping up. Especially in the last couple of days, I am more sore and more tingly (my back, it's a wierd sensation) than I have been since I learned that my CPK had jumped. If I did bloodwork today, I am pretty sure that it would be higher still. What the ?! This wasn't part of the plan.



  1. Ugh. I hope you get things under control soon.

  2. hi
    I was a chronic patient of polymyositis for 7 years and took prednisolone as high as 50 mg at times. then i was suggested to take alternative medicine and met this ayurvedic doctor. though the initial days without the steroid were difficult but now, i'm totally free from from it for the past 5 years. the incidences of CPK increase have also come down. I thought it would be good to share this info with you..


    1. can contact me at tpt11@yahoo.co.uk