- Could adjusting hormonal birth conrol have been a factor in triggering the onset? What, if any, are the ramifications for taking it in the future? Could it, or is it ever used to regulate autoimmune/chronic inflammatory disease issues? (this is just heresay, but I had someone tell me that they know someone who uses birth control to regulate fibromyalgia. I also had someone tell me that they used antibiotics for PM. I asked about this last time, and the doc didn't acknowledge this as a viable treatment that he was familiar with.)
- If my CK's are any lower than the previous visit (550), how close will I be to "remission"? What is remission, and what factors constitute it? If, in fact, I am within a "normal" range with the CK's, what next? It can't just be all about the CK's, because my body is still weak, stiff, and has some locked-up joint issues. Basically, once we get CK's to a normal level, what does that mean and where do we go from there?
I know I'll have more, and would appreciate suggestions for other questions.
There are some smaller, lingering symptoms that I want to mention. It's hard to remember what I've reported in prior visits, especially when I've been more concerned about the bigger stuff, like enzyme levels and functionality. Just want to make sure that I report some of the smaller tweaks that I notice, such as:
- tingling in back and feet (especially after exertion)... I experienced this at the beginning, and I still notice it.
- Red/pink splotches on my knees that come and go. Not like a rash, just a bright color change. I do have a minor rash on my knuckles, probaby just a little crossover of DM.
- My voice has never really come back to normal. I have a nasal/throaty sensation, like too much air is coming up through my throat and nose when I talk, and it's really annoying. Other people say they can't hear it, but it bothers me. I sound a little hoarse and nasal when talking, and my singing voice is definitely poorer.
On a completely different topic, I am not embarassed to admit that I like the Miley Cyrus song about the mountains. Who of us can't relate to climbing mountains as a metaphor for life's struggles? It's a catchy little tune, and the words are corny enough for me to close my eyes and think of them as a mantra as I'm spinning on the elliptical trainer at resistance level 3 (out of 20) with everything I've got. Keep on moving, keep on climbing... sing it, sister. I'll keep spinning.