When I read back through these posts, they look fairly positive. The truth is, I'm over it. Tired of the aches, pains, weakness, stiffness. Tired of the drugs. Tired of not being able to do the kinds of activities that young, healthy, vibrant people should be doing. Tired of not being able to live my life. Tired of being left behind.
And I'm scared to death.
I don't really have any advice that I am sure you haven't heard. I was 37 when I was diagnosed with dermatomyositis almost two years ago...and even though I am much better than I was, my life has changed in ways that make me sad and angry at times. It is sometimes hard reading other people's stories because they bring my own feelings to the surface but at the same time, it helps because I realize I am not alone. So thank you for sharing your story and I hope you continue to recover and have less of the scary times.
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