This blog is intended to chronicle my experiences with Polymyositis, a chronic autoimmune disease that involves the body's own immune system attacking and inflaming its muscles, resulting in debilitating weakness and other complications. I hope to provide a resource for anybody looking to others' experiences with the disease.
Sunday, July 17, 2011
July 2011
I have been feeling a little better on 10 mgs of Prednisone for the past few weeks. I am not running yet, but I hope that I am getting close. I still feel somewhat symptomatic, a few of the hallmark symptoms that seem to show themselves whenever I get inflammed are still hanging around. Mainly, I have a constant tingling sensation in my back. Pretty much all of my major back muscles are involved, especially in the upper back, through the shoulders. I still have a hint of a face rash, and my quads feel very stiff and heavy.
I am able to ride my road bike, which is pretty much as good as anyone can do in the current heat. My joints are still a bit achy and I still have some injury issues that don't seem to be healing on their own, but as I mentioned, they seem to be getting better, albeit on their own timeframe, not mine. Not there yet, but hopeful. I missed the Midnight 50K, which was a bummer. I have a few things up my sleeve for the next year, though. I've already signed up for Memphis, so that's no secret. The rest of my intended runs are in the spring, so I've got a bit of time to pull it together, as long as this body cooperates. I am spending a few hours a day on rehab, primarily massage, stretching, and strengthening. I am also trying the Galloway approach to building back mileage, which involves intervals of running and walking, rather than just straight-up running. I can only continuously run about 20-30 minutes until the pain kicks in, but with a few minutes running/few minutes walking interval routine, I can make it close to an hour. Better than nothing, but a long way to go.
Tuesday, July 5, 2011
On the up
So for now, sweet relief. I love Prednisone. I hate it that I love it. But I feel so much better. Am in a better mood, have energy, am excited about tomorrow and the next day and the next month. Aches and pains go away like they should. Body parts don't hurt for no reason. My skin looks vibrant ahd healthy. It's hard to feel worried about being sick when I'm manic on steriods. I catch myself enjoying the feeling, but it's deceiving. The hell to pay is that Prednisone speeds up the aging process. A pleasant thought.
I am also wide awake (again). There was popcorn popping just underneath my eyelids when I tried to go to bed just now. I tried reading, but that activity seemed a little too calm for my racing mind and eyeballs. I don't think the computer will help, but at least it's more interesting than my bedroom ceiling.
Goodnight to most of you. I'll be up for a little while...
Monday, May 9, 2011
Waiting
(patience is a virtue... too bad I stink at it!)
Friday, April 8, 2011
April 2011
Monday, February 21, 2011
Sylamore
The Sylamore 50K came and went in its usual place on the mid-February calendar. It was a great day. Wonderful trail brothers & sisters, and many more who came from across state lines to experience the paradise where I get to live.
Coming off of the New Orleans marathon just 6 days earlier, I didn't expect too much. I took the "slow and steady" approach through the first half, stopping first at the Blanchard Springs campground, then at Gunner Pool, and finally at the Barkshed campground that served as the turnaround point. Such a great area, I love the winding highways to get there through towns that time forgot, and the US Forest Service signs that let you know that you are about to be at home in the woods, in a place that you have come to know as intimately as only someone covering the distance on foot can.
I was hoping to get into the turnaround feeling fresh and ready to pick it up, and I pretty much did. The Sylamore trail has such great diversity that you can often run with an element of play, opening up on the flats and crashing the downhills. My legs seemed willing until about 3 miles to go, which, conveniently, is where the most technical part of the course is. Large, wet rocks seem that much larger and wetter at miles 29-30.
I finished in 5:39, pulling off a negative split by a minute or so, although that calculation is only as scientific as me glancing at my watch and trying to remember what time I left the turnaround. Much better than last time. A good day with great trail and even better trail people.
Here is another author's synopsis of the race, and some video as well:
http://endurancebuzz.com/2011/02/24/sylamore-trail-run-2011-results/#more-19181
Thursday, February 17, 2011
NOLA
(compare this with 2 feet of snow at home)

Here I am posing with Scott Jurek. He was gracious to the long line of distance running geeks who waited to pose with him at the expo, myself included. I gave him a few race day tips, I hope he did alright.
Here is another gem from the day:
Monday, January 17, 2011
Ready or not...

The picture is from the Athens-Big Fork Trail run the first weekend in January. It's a very hilly and challenging 26-mile course that follows an old postal trail out-and-back over 8 Ouachita Mountain ridges. It took me 3 attempts at this thing to actually have fun. The last time I tried it was 2 years ago, when I was getting sick but didn't know what was wrong yet. I hauled my miserable body up and down those mountains for almost 8 hours. This time it only took me a little over 6. (insert smiley face here)...
I have a few decisions to make about which runs I'm doing this year. I had a heavy road marathon year in 2010, and lived by a weekly cycle of long runs, tempo runs, and speedwork. While it was fun in some ways, I'm kind of ready to slow it down and crawl back into the woods for some trail running.
Off to a good start!